Monday, May 9, 2011


Prader-Willi Syndrome or PWS as we know it has changed our lives forever. I have said many times that this syndrome is something out of a science fiction novel. Most people I encounter can't even wrap their brains around the impact it has on Blaise's life and the everyday life of our family. PWS may have taken many things from us, but I won't let it take all of us, I WILL NEVER LET IT DO THAT! That being said let me tell you about all the things that PWS can never and will never take from Blaise, and our family.

PWS will never take away the absolute beauty of Blaise's eyes. Blaise has eyes that can pierce right through you and look into your soul.

PWS can never take away the amazing ability Blaise has to belt out a Lady GaGa tune.

PWS will never stop Blaise from having a heart big enough to swallow Texas. He can love like nobody that I have ever know.

Prader Willi will never stop Blaise from walking to raise money to find a cure
and reaching the finish line

PWS can never ever decrease the love and adoration Blaise has for his daddy

I know this for sure PWS will never stop Blaise from giving his heart to his fellow PWS angels

This syndrome will never stop Blaise from loving the education he gets in school

And most importantly Prader Willi Syndrome can never take away or decrease the overwhelming and all encompassing sense of pride, joy, and love I feel for my son. There is no joy greater than watching him grow and become the incredible super hero that he is to me. I applaud you Blaise for going above and beyond all they said you could ever do.


  1. This is so beautiful Rach. You have captured our angel perfectly. Love him so much. Mom-mom.

  2. i love reading your writing

  3. Hi
    My name is Jenna and I came across your site. Blaise is an amazing, courageous, strong and determined fighter. he is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and love it when people sign my guestbook.

  4. Well Said Rachel <3 I Love You & Blaise


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